Comments on: Recipe Index https://amindfullmom.com/recipe-index/ Real Food Recipes for Everyday Families Tue, 07 Nov 2023 12:58:41 +0000 hourly 1 https://wordpress.org/?v=6.4.3 By: Kristen Chidsey https://amindfullmom.com/recipe-index/comment-page-1/#comment-469945 Mon, 15 Aug 2016 01:16:10 +0000 http://amindfullmom.com/?page_id=190#comment-469945 In reply to Sonia.

Oh my goodness Sonia--I am so glad you found my blog and reached out to me.

Yes, it is something to be an atypical case. It sounds like we have very similar issues as well. And while you may not have vests, my doctors have stated that many people don't have much relief with them. For me hypertonic and excersie helpe me out the most. And I love my acapella.

The kids and I are doing okay--well, considering. My pancreatic insufficiency has led to chronic pancreatitis and I have a lot of pain with that. I really struggle with fat no matter how many enzymes I take, so right now I am focusing on high calories and natural fats like avocados. That seems to work better for me. My daughter has the same pancreatic issues as I do, while my son's pancreas appears good at the moment. He struggles with DIOS and the constant cough. Thankfully, he is not fighting anything but staph in his lungs. Layla, is always battling infections but she recovers quickly--she is a fighter!

I am praying about how to help others with CF and hoping this blog helps a bit.

Sounds like you have a few great recipes for high caloric intake. Be sure to check out my Peanut Butter Protein Smoothie--that is my favorite!1

I would love to stay in touch! Email me anytime at kristen@amindfullmom.com

And keep fighting the fight!!

]]> By: Sonia https://amindfullmom.com/recipe-index/comment-page-1/#comment-469806 Sat, 13 Aug 2016 00:07:53 +0000 http://amindfullmom.com/?page_id=190#comment-469806 Hi, my name is sonia 39 from Sydney Australia ! Found you via peter and Mary Frey vlog called "the Frey life" they have over 6k followers vologging about c.f and followed the link to c.f champions. Mary's story is also c.f champions. You can email me at sonia.mckel@ gmail.com I have osteoporosis too, malabasorption , and bronchiectasis. They treat me as a "atypical" c.f patient as my sweat test was negative but I have all the same issues as you too. I take hypertonic 7% in fact our clinic came up with it years ago after surfers found better clearance so they did the study and bang hypertonic was invented right here in Sydney. We are quite behind and different in ways of treatment e.g we don't use or have the vest. We use PEP , manual p.t or flutter or acapella . The government pays our treatments in full but whilst you may think this is wonderful we often can wait weeks for a bed or do home I.v which I prefer through my port. There are no single rooms and you have to share with four others in the hospital. I do neb antibiotics every other month right now its colistin, and oral zithromax three times a week.
I have a super charged calorie drink you may like to try : half and half, 1 cup, Scandishake, whole milk, whole cream, flavoring. Whizz together at 500 cal per glass.
Here they also have like puddings and juice based calorie increased drinks you can order through the hospital. Guacamole is also a good calorie increaser. Whole grain chips, beans, organic cheese, tomatoes, etc.
You can also just add calories to like potatoes with butter and cream etc serve with vegetables and meat or such . Anyway it would be great to hear from you and how the kids are doing. With love and prayers, sonia

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